dude that sucks im sorry to hear that you have that, my moms friend died from that.
Hope they get it treated and under controll, just make sure you get a seccond opinion and have the best doctors, its your life your talking about, alot of people are cheap and bargin shop for medical stuff, ive never understood that.
Well keep us updated, and post up some more pics! hows the recovery comming?
if you want to keep it from scaring, just keep it clean with peroxide or alcohol, whatever they suggest.