Back from the hospital

[lilgapeach]

Well we made it back FINALLY. They took two tubes of blood and a urin sampel poor lil thing was put through hell. We should have the results in a week or so, I will be on edge untill then lol.... Anyways here is a pic I took whiel we were in the waiting room waiting for him to pee in the little wee wee bag lol.

[Scrappy]

they will come back clear and free for life all of IA promises that

[HyPer50]

he doesn't look too happy to be there lol

[B16a2 Civic]

he doesn't look too happy to be there lol

if i had to pull out my wee wee and pee in a bag...i'd be pissed off too


btw, bad things happen to good people and i had abad thing happen to me...so your good to go....good news for will come in a week, 2 good people cant have 2 bad things happen...dont work like that homie Lol

[justinxecushyn]

i'm glad to see that you're back, dont worry about Lil Joe, he's going to be ok.

[Kristi]

i'm sure he will be ok, poor little guy. i bet he didn't like that

best of luck to the both of you.

[lilgapeach]

Thanks guys! Lil Scrappy I hope you don't break that promise... No he wasn't happy at all but I took the pic right after they drew his blood. B16a2 Cvic, I wish that were true but bad things ALWAYS happen to me lol but no matter how things go I will figuer out a way to deal with and get through it. Thanks everybody I really apprecieate (sp?) all the kind words it really means alot to me, my little man is my pride and joy he is only a month old but I don't think I could live without him.

[B16a2 Civic]

Thanks guys! Lil Scrappy I hope you don't break that promise... No he wasn't happy at all but I took the pic right after they drew his blood. B16a2 Cvic, I wish that were true but bad things ALWAYS happen to me lol but no matter how things go I will figuer out a way to deal with and get through it. Thanks everybody I really apprecieate (sp?) all the kind words it really means alot to me, my little man is my pride and joy he is only a month old but I don't think I could live without him.

Lol, im hoping for the best though, was just tryna to throw in a jokey joke, but i do hope all goes well and im sure if it doesnt (god forbid) im sure there are medical advances to help medicate the sickness....im really pullin for yah

[Scrappy]

hes a month old to the world, but hes been in you for 9 months and that is what brings the beauty and love, trust me girl we wont let you down, the whole situation and everyone involved will be strong and make it

[lilgapeach]

Lol, im hoping for the best though, was just tryna to throw in a jokey joke, but i do hope all goes well and im sure if it doesnt (god forbid) im sure there are medical advances to help medicate the sickness....im really pullin for yah

I need to do some more resurch on it but so far all I know of that they do to treat it is put them on soy formula..
If these next tests come back that he does have it, then we myself and Joe might have to be tested to see if we carrey the gene that causes that. Usuly the baby will get one of the what I now call "bad" gene from each parent. BUT he could have started it (dont think we are carriers) I guess it has to start somewhere. This is all he has done since we left the hospital, he even slep through diaper changes, had to MAKE him wake up to eat which just pissed him off lol

[guynga2004]

Thanks all for the support Amy really needs it, she isn't dealing with this very well. I know things will be just fine as long as we do what the doctors tell us to do.

[C22H19N3O4]

I need to do some more resurch on it but so far all I know of that they do to treat it is put them on soy formula..
If these next tests come back that he does have it, then we myself and Joe might have to be tested to see if we carrey the gene that causes that. Usuly the baby will get one of the what I now call "bad" gene from each parent. BUT he could have started it (dont think we are carriers) I guess it has to start somewhere. This is all he has done since we left the hospital, he even slep through diaper changes, had to MAKE him wake up to eat which just pissed him off lol

He should be showing some symptoms. If he does show symptoms both parents are carriers. I'm surprised that someone on either side of the family has not been diagnosed before, if that is the case. I hope the doctor told you not to feed the baby anything with lactose until they can confirm their suspicions. Like I said in your other post, the baby cannot ever consume diary products, and some veggies with a high content of galactose. As everyone else stated, everything will turn out grrrrrrrrreat. Goodluck.

[99ITRGIRL]

I'm sorry, but I havnt heard what was going on? Can anyone fill me in?

[lilgapeach]

He should be showing some symptoms. If he does show symptoms both parents are carriers. I'm surprised that someone on either side of the family has not been diagnosed before, if that is the case. I hope the doctor told you not to feed the baby anything with lactose until they can confirm their suspicions. Like I said in your other post, the baby cannot ever consume diary products, and some veggies with a high content of galactose. As everyone else stated, everything will turn out grrrrrrrrreat. Goodluck.

I have had callls the past 3 days from Emmory (sp?) making sure I know whats going on with him, when the dr offive first called to tell me the results the first thing she said was "you need to go RIGHT NOW and get him soy formula" I'm not sure what all the symptoms are the site I found about it had nothing about symptoms, the dr keep asking me if he was spitting up the other formula or the brest milk, which he was pretty bad I assumed that was one of the symptoms. Thakns

[lilgapeach]

I'm sorry, but I havnt heard what was going on? Can anyone fill me in?

My baby's PKU came back that he might have galactosemia, so we had to take him for a repeat PKU which came back the same as the first, so I had to take him to the hospital for tests yesterday so they could confirm that he has it or not. Praying he doesn't...

[C22H19N3O4]

Poor feeding by the baby is one of the signs. I'm not implying the baby has galactosemia, but I'm sure the hospital wants to be 100% sure in their diagnosis, hence the retesting. Some other signs to look for :
-Jaundice (yellowish discoloration of the skin and the whites of the eyes)
-Vomiting
-Poor weight gain
-Lethargy
-Irritability
-Convulsions
There is a site called http://www.galactosemia.org/ that is not for profit and started my parents with children who suffer from galactosemia. The site has tons of useful info. I'm sure you may have found it during your search online. Ask your pediatrician whether you should refrain from feeding the baby any dairy products until they confirm the issue. Goodluck!

[CUZ/EK]

I'm sorry about everything that is going on with your son no matter the friction that is between the 4 of us I know what its like to have a child with a unusually scary condition I will keep him in my prayers I still have to finish discussing it with James but maybe the letter thing is a start I'm just not real sure yet...we don't get to get on here very often but if I can find out some details about that condition then i will find a way to let u know Ty has so many different specialist even a gastero one dealing with things to that nature good luck and best wishes

[lilgapeach]

I'm sorry about everything that is going on with your son no matter the friction that is between the 4 of us I know what its like to have a child with a unusually scary condition I will keep him in my prayers I still have to finish discussing it with James but maybe the letter thing is a start I'm just not real sure yet...we don't get to get on here very often but if I can find out some details about that condition then i will find a way to let u know Ty has so many different specialist even a gastero one dealing with things to that nature good luck and best wishes

Thanks a lot Tiff we really appreciate (sp?) it, we have learned a great deal about it and are learning more and more every day.. We were relived to hear Tyler was ok he is to sweet of a kid to have to go through all of that horible stuff. I really think I jumped to conclusions last year and I am sorry for that I should have kept my mouth shut if I wasn't 100% posative about things. We miss hanging out with you guys, I really hope that you guys can get past it as we have and be friends with us again, back when we were hanging out you had said we were going to have a boy so that Katlyn would have a boy friend LOL I never thought we really would have a little boy together but we did!!! Anyways I hope you guys take care and thank you for keeping our son Joseph Jr in your prayers..

[B16a2 Civic]

any update?

[lilgapeach]

No not yet I wish they would hurry up and call me, I'm on edge here...